Congenital Heart Defects Suck

People that have read my blog for more than a week will know that we lost Bethy to a series of Congenital Heart Defects (CHD). They suck. They suck the big fat one.

I just had a call from Jo who needed some advice. Turns out lightning has struck the family a second time. Jo's older brother Grant had a baby recently, She stopped breathing last night, and it turns out that one of the valves in her heart is either sticking, or not big enough or something similar.

CHD Strikes again. Let's see the geneticists say they're no connection.

Anyway, Baby Rae has been referred to Guys - not sure for when - and obviously Mummy & Daddy are in a state. As is usual with this community, I will be shouting for information in the coming days. Valves were something I never had any dealings with as Bethy had a series of problems to deal with, valves being the least worrying.

So, valve experts be ready :)

Newer Post Older Post

8 Responses to “Congenital Heart Defects Suck”

debbie said...

OH NO Dan,, sending hugs to Jo's Older Brother and family,, and fingers crossed for baby Rae too..

Emma said...

Clo's problems are all with the valves. Yell if you want me for anything.
Hope they get her nice and stable and sort the valve out with the least intervention possible
xxx

Mary Fran said...

Jon & Katie both have valve issues so I'm here for you. I'll be keeping Baby Rae in my thoughts and prayers.

Little Nut Tree said...

So sorry for Jo's brother :(

Thoughts are with them.. if there's anything I can do... I know practically nothing but I know a few doctory type people... you never know..

x

g-man said...

That sucks the big one indeed. I will remember the babies in my prayers again.

Posh Totty said...

Im so sorry to hear that, one of my lil mans probs is his valves too, so as always shout if you need me.

Im thinking of them all, especially baby Rae Xxxx

Tim said...

Really sorry to hear about baby Rae and Jo's brother and wife... We will be thinking of you all and have them in our prayers...

debbie said...

Just wondering how baby rae was doing? any news,